International Autism Awareness Day - 2 April 2017

International Autism Awareness Day – 2 April 2017

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Autism is a disorder defined by changes present before the age of three and is characterized by qualitative changes in communication, social interaction and the use of the imagination.

Autism Awareness Day

DEFINITION OF THE AUTISM SOCIETY OF AMERICAN – ASA (1978)
Autism Society of American = American Autism Association.
Autism is an inadequacy in development that manifests itself severely throughout life. It is incapacitating and typically appears in the first three years of life. It affects about 20 out of every 10,000 born and is four times more common in males than in females. It is found all over the world and in families of any racial, ethnic and social configuration. It has not been possible to prove any psychological cause in the environment of these children that can cause the disease.

According to ASA, the symptoms are caused by physical dysfunctions of the brain, checked by anamnesis or present at the examination or interview with the individual. They include:

1. Disorders in the rhythm of the appearance of physical, social and linguistic abilities.
2. Abnormal reactions to sensations. The functions or areas most affected are vision, hearing, touch, pain, balance, smell, tasting and way of maintaining the body.
3. Speech and language absent or delayed. Certain specific areas of thinking, whether present or not. The immature rhythm of speech, restricted understanding of ideas. Use of words without association with meaning.
4. Abnormal relationship with goals, events, and people. Answers not appropriate for adults and children. Objects and toys not used properly.

Source: Gauderer, E. Christian. Autism and other developmental delays: a practical guide for parents and professionals. Rio de Janeiro: Revinter; 1997. pg 3.

DEFINITION OF DSM-IV-TR (2002)
Autistic Disorder consists of the presence of a compromised or markedly abnormal development of social interaction and communication and a very restricted repertoire of activities and interests. The manifestations of the disorder vary immensely, depending on the level of development and the chronological age of the individual.

DEFINITION OF ICD-10 (2000)
Childhood autism: A developmental disorder characterized by: (a) abnormal or altered development manifested before the age of three years, and (b) presenting a characteristic disturbance of functioning in each of the following three domains: Social interactions, communication, focused and repetitive behavior. In addition, the disorder is commonly accompanied by numerous other nonspecific manifestations, for example: phobias, sleep or eating disorders, tantrums or aggression (self-agressiveness).

Testimony of a mother

Rayan my son, now five years old, was diagnosed with autism at a hospital in Japan in November 2010. This diagnosis caught us by surprise because we did not know what autism was. The doctor said that autism has no cure and told me and my family – go home, you have a special child.

The maximum the hospital could do would be to refer us to a special nursery school and that’s what the hospital did. We went to the little school which to enter was very difficult, the information fell like a bomb in our hands, my husband looking at me said – love all those children who are there inside this school are not better and no worse than our Rayan and if It is here that they will help us bring our son back, it will be here that he has studied.

My tears fall a lot without stopping, I will use the words of a friend of ours who has been on this path for some time with his autistic son. First comes mourning, then fighting. Mourning for what a father and mother feed even before the child’s conception, dreams, projects, future, etc. There I felt as if the hope of everything we dreamed for our Rayan was dying.

I spent three days crying because that baby so beautiful that I asked God had an unknown problem for us and there was nothing we could do. In Japan, there is no specific place to treat autism, so we are desperate not knowing what to do and in the school that Rayan studies all children with any kind of syndrome, disability study together.

It was when I decided to learn about the subject through the internet, I spent a year and a half closed, seeing my baby in an absurd silence, he seemed like a deaf child, but after the diagnosis was born in me a force that motivated me for hours to study about autism. Reportages, movies, everything about autism was what my daughter and I and my husband did on the weekends, nothing caught Rayan’s attention, his stereotyped movements, he waved his little hands like he was flying. This happened every time Rayan found himself in the face of SpongeBob’s antics.

Related Post: World Autism Awareness Day – April 2 2017

What struck me, even more, was because all the babies born at the same time as Rayan had different attitudes than his, which worried me a lot. Some children who were born with Rayan already spoke, others interacted very well in the school, and Rayan could not interact with other children, because in the three daycare centers that I put Rayan was the same, he did not interact with any of the children and only felt Well at home, in our room in front of the TV watching SpongeBob and even today, he just likes this cartoon, the color yellow and red.

When I opened the web page and saw the testimony of parents of a child from the United States who even made a film about their fight, “My Son My World” was where I saw a light at the end of the tunnel. It was as if hope was resurrected, that’s when my family and I truly came together to help our angel Rayan.
We saw and discovered that it was not to do anything difficult or complicated, forcing Rayan to come to us, to this world, and rather we go to him by repeating his movements, accepting him as he is, even without understanding very well, we follow In this line of techniques from the Son-Rise program to help Rayan interact with us and so we went without forcing anything.

Now, at the age of five using the Son-Rise program in our daily lives, it was where the changes began to appear. Rayan is releasing different sounds he still does not say a word, but I think I’m still going to hear my son calling me a mama’s day. He only listens to us when we insist, does not sleep well, but he is a child’s sweet. He does not get along with strangers, he has hours of crisis where he cries a lot and gets angry with certain sounds. He does not admit to being taken from what he is doing either in front of the TV, flipping through a huge magazine we get from SpongeBob and when he flips it seems like he’s reading, it’s amazing.

My eldest daughter attended a Unesco English speaking competition in Japan in January this year and won the first prize talking about autism. She talked about the fight we had in Japan since we discovered the autism of our little Rayan. The love of God was my strength to help me not to fall in front of this diagnosis and it was also my love for Rayan that gave me the motivation to help other families that I keep in touch with and who are suffering from the lack of information about autism here in Japan.

I still plan to host an event for families with children with autism, families wishing to learn more about them, professional teaching students here in Japan. It would be the first Autism Awareness event in Japan for foreigners. The event was scheduled to take place on May 4, 2011, in Gunma, but due to the 2011 disaster, the event was canceled.

Even so I would like to be a voice to many people who may have their children 24 hours indoors and close to you, and yet they can not understand or diagnose any problem with your child. Autism has no specific cause so it is called syndrome ie a set of symptoms.

Rarely are the moments that Rayan looks at us and really stays with us, but at this very moment, I realize even if short, his gaze motivates me to continue to fight for him, day after day.

They asked me what has changed in my life and in my family. Many things have changed we are just crawling on this path yet, we have a lot to learn, but I have a wonderful daughter, Ana Ramayany at 19 years of blessedness and Rayan Gabriel a wonderful angel and very special, in every way. I believe it was God who chose me to bring to the world and take care of that angel in my house, a very special mission and to have experience in two completely different ways of the mission to educate.
With all this we learn to look at any child with more attention, affection, respect, and love be it normal or special.

They also asked us what we expect from the future. We want to live one day at a time and learn from Rayan the best way to help him on this walk that is just beginning, and we will be together in whatever he conquer. No special child needs pity but love. An unconditional love capable of transforming lives as our life has been changed and transformed with the arrival of our angel.

In 2012 we were blessed by a couple of our friends with a ticket and in October I traveled my daughter and me to the United States for Son Rise. We spent a week learning everything we could to help Rayan being a success this trip. We will have to go back four more times to finish the program, but due to the financial conditions, we still have no forecast of return. But we do not stop whenever we apply the techniques for the better integration of our angel Rayan. Currently, my daughter is studying the psychology of specialization in special children at Tsukuba Daigako University and everything we can do to help Rayan.

Rayan has already undergone several tests, he does not speak, but he has passed the phase of apathy and many other difficult phases that only those who have an autistic child knows. Today he is in school and can already stay in the environment with other people, but I have not interacted yet, it is in his only watching and running to and fro.
He shakes his little hands when he’s happy and gets much happier in front of the TV watching SpongeBob SquarePants. In the koen swing, in front of the washing machine when it is working, seeing objects that spin, shine etc.

I sent my story to the United States and today Rayan has a Son-Rise therapist who calls once a month at home to help me, Mr. Brayan Nelson and I know it will also help many mothers and fathers in this fight. The integration of Rayan in the school with special children’s area professionals has helped a lot.

Recently my daughter Ana was in the United States and spent 45 days there studying about disability and especially autism. She has returned with many new things that will help even more.

This story I’m telling is just a little bit of what we live with our angel. Many people come close and say that it does not even look like he is autistic, but only the parents know what we experience in our day to day life with a child suffering from this syndrome.

For those interested, I will pass on all the information obtained by the Son Rise program and everything we learned when we went to the United States. Also we have contact with the Autism Magazine of Brazil that also has helped us with very important information. So everyone can better understand the subject and have the success that we are having with our angel Rayan.

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